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The XLHED Network is a global community for patients and families affected by XLHED, brought to you by Edimer Pharmaceuticals.

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Advocacy Groups Bring Smiles

About XLHED

X-linked hypohidrotic ectodermal dysplasia (XLHED) is a rare genetic disorder caused by a change in a gene on the X chromosome. Children born with XLHED do not develop normal hair, teeth, or sweat glands. They may also have more respiratory tract infections, skin problems, and be more likely to develop life-threatening medical problems as they grow.

There are currently no specific treatments for XLHED. Edimer Pharmaceuticals is conducting research on a new treatment that may offer hope to those affected by XLHED.

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Share Your Story

Your video story could make a difference to others in the XLHED/HED community. Submit a personal video story to the "I Wish You Knew" Awareness Campaign. You could help bring information and understanding concerning XLHED/HED to the public and the community. Your story should focus on your experiences with XLHED/HED and what you wish other people knew about living with this rare condition.

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Upcoming Events

Here is a calendar of important events and activities taking place soon:

June 07, 2013

NFED's Don't Sweat It Golf Classic

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July 21, 2013

Zach Hamm's Don't Sweat It
Golf Classic

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