Little Boy

Next Event

24

May

Family Day

If you'd like to be involved, we have
ways for you to make a difference.

  • 1NEW ONLINE XLHED RESOURCE CENTER

    At Edimer our dedication to improving the health and quality of life for those affected by XLHED goes far beyond a potential treatment. It extends to providing the resources and educational information needed to help people stay current, informed, and, empowered.

    Find Out More
  • 2EXCITING NEWS ABOUT NEWBORN CLINICAL TRIAL

    The first baby boy enrolled in the XLHED Newborn Clinical Trial completed dosing with EDI200. This milestone is a direct result of the courage and conviction of those who participated in clinical trials and who support the science of EDI200.

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  • 3Join the XLHED Network

    If you have not yet become part of the XLHED community, join today! You'll have access to news about the latest research, clinical studies, and treatments in development.

    Join Now

About XLHED

X-linked hypohidrotic ectodermal dysplasia (XLHED) is a rare genetic disorder caused by a change in a gene on the X chromosome. Children born with XLHED do not develop normal hair, teeth, or sweat glands. They may also have more respiratory tract infections, skin problems, and be more likely to develop life-threatening medical problems as they grow.

There are currently no specific treatments for XLHED. Edimer Pharmaceuticals is conducting research on a new treatment that may offer hope to those affected by XLHED.

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EDI200 Milestone Reached

Edimer Pharmaceuticals is excited to announce the enrollment and completed dosing of the first XLHED-affected newborn in the Newborn XLHED Clinical Trial of EDI200. President and CEO of Edimer Pharmaceuticals, Neil Kirby says, "Today is the culmination of several years of dedicated and impassioned work by the Edimer team and our external collaborators, including those who selflessly participated in the clinical trials."

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Free Genetic Counseling and Testing

The XLHED Global GeneScreen Project is a new and improved version of a program you may have heard called Forty-Women Strong. The program offered free genetic testing for XLHED to those who qualified. Today, that program not only has a new name, but has also expanded to reach more people who are affected by XLHED.

Find out more
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HAVING A BABY?