Thank you for your interest in the XLHED Network — dedicated to patients and families affected by Hypohidrotic Ectodermal Dysplasia (HED) or X-linked HED (XLHED) and their healthcare providers. Members of our network benefit from informative updates on HED and XLHED research and upcoming clinical trials sponsored by Edimer Pharmaceuticals.

Edimer is leading the way in the effort to develop treatment options for XLHED — a rare genetic condition resulting in the impaired formation of hair, teeth, and sweat glands. To join the XLHED Network, please click the button below to complete the confidential form — it will take approximately five minutes to complete.