News & Events

Stay current with breaking news, helpful resources, and special events planned in the XLHED community. Bookmark this page and visit often, or follow us on Facebook for instant updates. As a member of our community, let us know if you have an event or news story you would like us to feature. Send an e-mail to, and we’ll be in touch!

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Get free genetic testing

Find out if you are a carrier for XLHED with FREE genetic testing. All you have to do is join the XLHED Network. You will be sent an e-mail if you are a candidate for testing. Please note that the genetic analysis is free, but you will be responsible for other costs related to the testing. These costs may include, for example, the doctor's office visit and having your blood taken. It's another important reason for you to join the XLHED Network today.